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UNITE for Bleeding Disorders Walks

Houston Unite Walk

Saturday, October 21, 2023 – Join us for fun, food, and trunk or treating at Sam Houston Race Park!

Hill Country Unite Walk

Saturday, October 28, 2023 – Join us for food, fun, trick or treating and walking at a beautiful Austin Park – Brushy Creek Lake Park!

By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways.  Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives.  Your donation truly makes a difference!

The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to two events, including the Hill Country.  It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!

 

Because of the generous support of our sponsors and supporters since 2008, The Lone Star Bleeding Disorders Foundation has:

  • Raised awareness of bleeding disorders such as Hemophilia and von Willebrand Disease, hosting over 5,000 walkers, many of who have never heard of bleeding disorders
  • Moved into spacious new office space
  • Began programs specific to our Women/Girls, Teens, and Hispanic Community
  • Make a $10,000 donation to the Judith Graham Pool Fellowship Program at the National Hemophilia Foundation, supporting researchers and doctors finding better treatments and a cure for bleeding disorders.
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News from HFA

  • Word from Washington: August 2023

    Advocates are responding to yet another payer-side, cost-saving scheme that harms patient access to medicine. The latest version, the so-called “alternative funding program” (AFP), is a shady strategy pitched to employers that promises to lower health plan spending on specialty drugs such as bleeding disorder products and other expensive medicines. AFP vendors advise employer health The post Word from Washington: August 2023 appeared first on Hemophilia Federation of America.

  • UPDATE: Takeda to Voluntarily Replace Certain BAXJECT® II Reconstitution Devices

    UPDATE as of 8/28/2023 Takeda, in agreement with the U.S. Food and Drug Administration (FDA), has decided to voluntarily replace BAXJECT® II reconstitution devices produced by Baxter between October 2021 and January 2022 co-packaged for use in conjunction with RECOMBINATE™ [Antihemophilic Factor (Recombinant)] and RIXUBIS® [Coagulation [Factor IX (Recombinant)]. Takeda has received reports of white The post UPDATE: Takeda to Voluntarily Replace Certain BAXJECT® II Reconstitution Devices appeared first on Hemophilia Federation of America.

  • Dear Addy: In-District Legislative Meetings

    Dear Addy, With Congress in recess, how can I continue to participate in legislative advocacy? Signed, Bleeding Disorders Advocate Dear Bleeding Disorders Advocate, Every August, the United States Congress embarks on a recess, temporarily adjourning its legislative business and allowing members to return to their home states and districts. The August recess tradition serves as The post Dear Addy: In-District Legislative Meetings appeared first on Hemophilia Federation of America.

  • Word from Washington: July 2023

    July saw mounting coverage losses from the national Medicaid unwinding. As of July 28, nearly four million people have been disenrolled from Medicaid since redeterminations began in April 2023. Three-quarters of that total lost coverage for procedural reasons, i.e., paperwork, and may still be eligible for Medicaid. In response to this dismaying track record:  Also The post Word from Washington: July 2023 appeared first on Hemophilia Federation of America.

  • Blog: Intern Introspective #7

    It feels incredibly surreal to think about the fact that this is my final week at HFA this summer, and that in less than a week I will no longer be exploring D.C. and will instead be back home in San Diego. The past ten weeks here in Washington, D.C. with HFA have been an The post Blog: Intern Introspective #7 appeared first on Hemophilia Federation of America.