TBDC is a joint effort between the Lone Star BDF and Texas Central Texas Central Bleeding Disorders, bringing over 800 people from all over the state of Texas together for a weekend of education, networking, and fun. Educational sessions are available for every step of life with a bleeding disorder. A fun Final Night event wraps up the weekend, with activities for the whole family. To register online for the 2023 Conference at The Woodlands Waterway Marriott, June 16-18, please click here.
Advocates are responding to yet another payer-side, cost-saving scheme that harms patient access to medicine. The latest version, the so-called “alternative funding program” (AFP), is a shady strategy pitched to employers that promises to lower health plan spending on specialty drugs such as bleeding disorder products and other expensive medicines. AFP vendors advise employer health
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UPDATE as of 8/28/2023 Takeda, in agreement with the U.S. Food and Drug Administration (FDA), has decided to voluntarily replace BAXJECT® II reconstitution devices produced by Baxter between October 2021 and January 2022 co-packaged for use in conjunction with RECOMBINATE™ [Antihemophilic Factor (Recombinant)] and RIXUBIS® [Coagulation [Factor IX (Recombinant)]. Takeda has received reports of white
The post UPDATE: Takeda to Voluntarily Replace Certain BAXJECT® II Reconstitution Devices appeared first on Hemophilia Federation of America.
Dear Addy, With Congress in recess, how can I continue to participate in legislative advocacy? Signed, Bleeding Disorders Advocate Dear Bleeding Disorders Advocate, Every August, the United States Congress embarks on a recess, temporarily adjourning its legislative business and allowing members to return to their home states and districts. The August recess tradition serves as
The post Dear Addy: In-District Legislative Meetings appeared first on Hemophilia Federation of America.
July saw mounting coverage losses from the national Medicaid unwinding. As of July 28, nearly four million people have been disenrolled from Medicaid since redeterminations began in April 2023. Three-quarters of that total lost coverage for procedural reasons, i.e., paperwork, and may still be eligible for Medicaid. In response to this dismaying track record: Also
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Dear Addy, I am the only person I know who has a bleeding disorder. I don’t know any other patients at my HTC, and I live pretty far away from my nearest member organization, so I don’t usually get the chance to attend community events. I want to connect with others in the community, but
The post Dear Addy: Finding Community appeared first on Hemophilia Federation of America.
