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Our Staff & Board of Directors

 

 

 

Melissa Compton, Executive Director

Melissa has been involved with the Lone Star Bleeding Disorders Foundation since learning her son has hemophilia in 2003. She began volunteering, and has served as Hemophilia Walk Manager and Program Coordinator before becoming Executive Director. Melissa graduated from Texas A&M University, where she met her husband Brian. She and Brian have two children, son Kyle, and daughter Sarah. She is thrilled to be serving the bleeding disorders community of Texas.

 

 

Heidi Hensley, Director of Community Relations

Heidi has worked for the Lone Star Bleeding Disorders Foundation since 2008. She is privileged to serve such an amazing community! It is important to her to raise awareness for the bleeding disorders community as well as help provide families with education, support and advocacy. Heidi graduated from Texas A&M University. She is married to her high school sweetheart and they have four children. She enjoys spending time with family and friends and playing tennis.

Kelley O’Hara, Outreach and Education Coordinator

Kelley has been involved with the Lone Star Bleeding Disorders Foundation since her son’s hemophilia diagnosis in 2000. She became involved with the First Step program helping newly diagnosed families and served on the board as a trustee. Kelley graduated from Texas A&M University with a psychology degree then became a nurse as a second career. She is married to Ryan and they have a blended family of five children. She is excited to be back involved with the bleeding disorder community.

Tara Stillman, Development Manager

We are excited to welcome Tara Stillman to our staff as Development Manager! More to come on Tara soon!

Board of Directors

The Board of Directors for the Lone Star Bleeding Disorders Foundation is the governing body. The Board, along with its advisors, meets bi-monthly to discuss governing and programmatic issues for the organization.

  • Amanda Wolgamott, President
  • Allison Pohl, 1st Vice President
  • Raymond Stanhope, 2nd Vice President
  • James Setliff, Treasurer
  • Laura Portales, Secretary
  • Celia Patino, Trustee
  • Aaron Gonzales, Trustee
  • Laura Castillo, Trustee
  • Sabrina Farina, Social Worker Gulf States HTC, Treatment Center Advisor
  • Trinh Nguyen, Texas Children’s Comprehensive HTC, Treatment Center Advisor,

News from HFA

  • Leading Advocacy Organizations Celebrate Federal Rule Strengthening Protections Against Disability Discrimination 

    The Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC), National Bleeding Disorder Foundation (NBDF) and Hemophilia Federation of America (HFA) are pleased to share that after advocacy from the bleeding disorders community, the U.S. Department of Health and Human Services (HHS), through its Office for Civil Rights (OCR), finalized a new rule The post Leading Advocacy Organizations Celebrate Federal Rule Strengthening Protections Against Disability Discrimination  appeared first on Hemophilia Federation of America.

  • Advocacy News: April 2024

    Word from Washington After one year, Medicaid coverage losses during “unwinding” continue to surpass worst fears According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 21 millionAmericans have lost Medicaid coverage during the first year after states were allowed to resume eligibility verifications following the COVID-19 public health emergency. There remains wide variation The post Advocacy News: April 2024 appeared first on Hemophilia Federation of America.

  • May is Hepatitis Awareness Month

    In 2001, the Centers for Disease Control and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral hepatitis. In the 1980s and ’90s, thousands of people with hemophilia contracted HIV and hepatitis C (HCV) from the contaminated blood supply transmitted by clotting factor products. The post May is Hepatitis Awareness Month appeared first on Hemophilia Federation of America.

  • FDA Approves One-Time Gene Therapy for Adults with Hemophilia B

    From Pfizer: Pfizer Inc. announced that the US Food and Drug Administration has approved BEQVEZ™ (fidanacogene elaparvovec-dzkt) for the treatment of adults with moderate to severe hemophilia B who currently use factor IX (FIX) prophylaxis therapy, or have current or historical life-threatening hemorrhage, or have repeated, serious spontaneous bleeding episodes, and do not have neutralizing The post FDA Approves One-Time Gene Therapy for Adults with Hemophilia B appeared first on Hemophilia Federation of America.

  • Advocacy News: March 2024

    Word From Washington Federal Agencies Supreme Court Congress State of the States Oregon becomes first state in 2024 to pass protections against copay accumulator adjusters. Oregon Governor Tina Kotek (D) signed legislation unanimously passed by the House and Senate that protects consumers in state-regulated health plans from harmful and discriminatory copay accumulator adjuster programs (CAAPs). The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.