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Our Staff & Board of Directors

 

 

 

Melissa Compton, Executive Director

Melissa has been involved with the Lone Star Bleeding Disorders Foundation since learning her son has hemophilia in 2003. She began volunteering, and has served as Hemophilia Walk Manager and Program Coordinator before becoming Executive Director. Melissa graduated from Texas A&M University, where she met her husband Brian. She and Brian have two children, son Kyle, and daughter Sarah. She is thrilled to be serving the bleeding disorders community of Texas.

 

 

Heidi Hensley, Director of Community Relations

Heidi has worked for the Lone Star Bleeding Disorders Foundation since 2008. She is privileged to serve such an amazing community! It is important to her to raise awareness for the bleeding disorders community as well as help provide families with education, support and advocacy. Heidi graduated from Texas A&M University. She is married to her high school sweetheart and they have four children. She enjoys spending time with family and friends and playing tennis.

Kelley O’Hara, Outreach and Education Coordinator

Kelley has been involved with the Lone Star Bleeding Disorders Foundation since her son’s hemophilia diagnosis in 2000. She became involved with the First Step program helping newly diagnosed families and served on the board as a trustee. Kelley graduated from Texas A&M University with a psychology degree then became a nurse as a second career. She is married to Ryan and they have a blended family of five children. She is excited to be back involved with the bleeding disorder community.

Tara Stillman, Development Manager

We are excited to welcome Tara Stillman to our staff as Development Manager! More to come on Tara soon!

Board of Directors

The Board of Directors for the Lone Star Bleeding Disorders Foundation is the governing body. The Board, along with its advisors, meets bi-monthly to discuss governing and programmatic issues for the organization.

  • Amanda Wolgamott, President
  • Allison Pohl, 1st Vice President
  • Raymond Stanhope, 2nd Vice President
  • James Setliff, Treasurer
  • Laura Portales, Secretary
  • Celia Patino, Trustee
  • Aaron Gonzales, Trustee
  • Laura Castillo, Trustee
  • Sabrina Farina, Social Worker Gulf States HTC, Treatment Center Advisor
  • Trinh Nguyen, Texas Children’s Comprehensive HTC, Treatment Center Advisor,

News from HFA

  • Scholarship Recipient: Michael Potanin

    2023 HFA Educational Scholarship Johns Hopkins University, Maryland I am honored to have been chosen as a recipient of the HFA Educational Scholarship. This recognition provides immense support to me as I pursue my education and career goals. As a hemophiliac who has personally experienced the challenges of living with a genetic disorder, I am The post Scholarship Recipient: Michael Potanin appeared first on Hemophilia Federation of America.

  • Scholarship Recipient: Porus Pavri

    2023 HFA Educational Scholarship Rutgers University, New Jersey As an individual with hemophilia, my journey has been shaped by both challenges and determination. These experiences have propelled me towards pursuing a business major and setting ambitious future goals. I believe that the intersection of my personal circumstances and academic aspirations is a unique space where The post Scholarship Recipient: Porus Pavri appeared first on Hemophilia Federation of America.

  • Blog: Random Thoughts from a Venerable Hemophiliac 

    At 73 and retired, I can look back on life, and wonder how I got to where I am.  Seventy-three is old. You appreciate social security, Medicare, pensions, and the occasional days where arthritis isn’t winning the joint battle.  You appreciate your high school girlfriend who became your wife of 52 years, your adult sons and The post Blog: Random Thoughts from a Venerable Hemophiliac  appeared first on Hemophilia Federation of America.

  • Novo Nordisk Announces Supply Shortage

    Novo Nordisk today announced an important update about the Rebinyn®, Coagulation Factor IX (Recombinant), GlycoPEGylated 3000 IU vial size.  From Novo Nordisk: In May 2023, Novo Nordisk launched the Rebinyn® 3000 IU vial size, and the demand for this vial size has outpaced our expectations. This has resulted in a temporary shortage that will lead The post Novo Nordisk Announces Supply Shortage appeared first on Hemophilia Federation of America.

  • Word from Washington: January 2024

    On January 16, the U.S. Department of Health and Human Services withdrew its appeal in the litigation over HHS’s copay accumulator adjuster regulation. Patient groups including HFA applauded this latest development in the lawsuit.  As a reminder, patient groups led by the HIV + Hepatitis Policy Institute had filed suit against HHS, challenging its 2021 The post Word from Washington: January 2024 appeared first on Hemophilia Federation of America.