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Giving Tuesday

 

Giving Tuesday is a global campaign to encourage charitable giving. By donating the Lone Star Bleeding Disorders Foundation on Giving Tuesday, you are making an impact on families in South Texas with Hemophilia, von Willebrand Disease, and other rare bleeding disorders. 

 

Your support enables us to provide programs like Camp Ailihpomeh, a summer camp for boys with bleeding disorders, where patients like Kyle took a huge step towards independence by learning to infuse his medication at the age of 7. 

 

Programs like the Texas Bleeding Disorders Conference brings families across the state together for a weekend of education and networking. Families like the Clawsons feel supported and empowered when they attend Chapter events and connect with other families going through similar issues. And for families whose child has spent a week in the hospital with a dangerous bleed, we are able to provide financial assistance through our Helping Hands Program.

 

You can make a difference by giving on Giving Tuesday!

Make a difference Today!

Click here to Donate

News from HFA

  • Word from Washington: November 2023

    HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community members from 16 different states came to Washington, D.C., for policy and advocacy briefings, followed by meetings on Capitol Hill with 35 Congressional offices.   Advocates asked lawmakers to support the HELP Copays Act (H.R. 830, S. The post Word from Washington: November 2023 appeared first on Hemophilia Federation of America.

  • HFA Project Featured in International, Peer-Reviewed Scientific Journal

    Hemophilia Federation of America is excited to announce its work encouraging patient-centered research for females with bleeding disorders, conducted by members of its staff as well as trusted medical advisors in the bleeding disorders community, has been published in the international, peer-reviewed scientific journal Haemophilia. “Females+ with bleeding symptoms or a diagnosis of a bleeding The post HFA Project Featured in International, Peer-Reviewed Scientific Journal appeared first on Hemophilia Federation of America.

  • Dear Addy: SSI Eligibility

    Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls that might cause me to lose eligibility for both programs. What do I need to watch out for? Signed,Worried Dear Worried, Unfortunately, you are right to be concerned about hidden The post Dear Addy: SSI Eligibility appeared first on Hemophilia Federation of America.

  • Word from Washington: October 2023

    Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at issue permitted health plans to implement so-called “copay accumulator adjuster programs” (CAAPs)—strategies whereby health plans accept copay assistance, but refuse to credit those amounts toward The post Word from Washington: October 2023 appeared first on Hemophilia Federation of America.

  • Dear Addy: Medicare Enrollment 2024

    Dear Addy, I’ve been enrolled in Medicare for a couple of years now and am weighing my plan options for 2024. What do I need to know about choosing a plan for the coming year? Signed, Medicare Beneficiary Dear Beneficiary, Every year Medicare Open Enrollment runs from October 15 through December 7. This is the The post Dear Addy: Medicare Enrollment 2024 appeared first on Hemophilia Federation of America.