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Martes de Donaciones

Giving Tuesday es una campaña mundial para fomentar las donaciones caritativas. Al donar a la Fundación de Trastornos Hemorrágicos Lone Star, usted está haciendo un gran impacto en las familias en el sur de Texas con hemofilia, Enfermedad de von Willebrand y otros trastornos hemorrágicos raros.

Su apoyo nos permite ofrecer programas como el Campamento Ailihpomeh, un campamento de verano para niños con trastornos hemorrágicos, donde pacientes como Kyle dieron un gran paso hacia la independencia al aprender a administrarse la medicación a los 7 años.

Programas como la Conferencia sobre Trastornos Hemorrágicos de Texas reúnen a familias de todo el estado durante un fin de semana de formación y establecimiento de contactos. Las familias como los Clawson se sienten apoyadas y capacitados cuando asisten a los eventos de la asociación y se conectan con otras familias que atraviesan problemas similares. Y a las familias cuyo hijo ha pasado una semana en el hospital con una hemorragia peligrosa, podemos proporcionarles ayuda económica a través de nuestro Programa Helping Hands.

¡Usted puede hacer una gran diferencia donando en Giving Tuesday!

¡USTED PUEDE HACER LA DIFERENCIA HOY MISMO!

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News from HFA

  • Word from Washington: November 2023

    HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community members from 16 different states came to Washington, D.C., for policy and advocacy briefings, followed by meetings on Capitol Hill with 35 Congressional offices.   Advocates asked lawmakers to support the HELP Copays Act (H.R. 830, S. The post Word from Washington: November 2023 appeared first on Hemophilia Federation of America.

  • HFA Project Featured in International, Peer-Reviewed Scientific Journal

    Hemophilia Federation of America is excited to announce its work encouraging patient-centered research for females with bleeding disorders, conducted by members of its staff as well as trusted medical advisors in the bleeding disorders community, has been published in the international, peer-reviewed scientific journal Haemophilia. “Females+ with bleeding symptoms or a diagnosis of a bleeding The post HFA Project Featured in International, Peer-Reviewed Scientific Journal appeared first on Hemophilia Federation of America.

  • Dear Addy: SSI Eligibility

    Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls that might cause me to lose eligibility for both programs. What do I need to watch out for? Signed,Worried Dear Worried, Unfortunately, you are right to be concerned about hidden The post Dear Addy: SSI Eligibility appeared first on Hemophilia Federation of America.

  • Word from Washington: October 2023

    Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at issue permitted health plans to implement so-called “copay accumulator adjuster programs” (CAAPs)—strategies whereby health plans accept copay assistance, but refuse to credit those amounts toward The post Word from Washington: October 2023 appeared first on Hemophilia Federation of America.

  • Dear Addy: Medicare Enrollment 2024

    Dear Addy, I’ve been enrolled in Medicare for a couple of years now and am weighing my plan options for 2024. What do I need to know about choosing a plan for the coming year? Signed, Medicare Beneficiary Dear Beneficiary, Every year Medicare Open Enrollment runs from October 15 through December 7. This is the The post Dear Addy: Medicare Enrollment 2024 appeared first on Hemophilia Federation of America.