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Abogacía

Solos podemos hacer muy poco; Juntos podemos hacer mucho más. -Helen Keller

 

La Fundación de los Trastornos Hemorrágicos Lone Star es miembro de la Coalición para la Abogacía de Trastornos Hemorrágicos de Texas. Abogamos a nivel estatal y federal sobre cuestiones importantes para la comunidad de trastornos hemorrágicos. La coalición es un esfuerzo conjunto de la Fundación de Trastornos Hemorrágicos Lone Star y la Asociación de Hemofilia Texas Central. Obtenga más información sobre la coalición en: txbdcoalition.org

¡Días de Cabildeo en Austin 2023!

Acompañenos en nuestros Días de Cabildeo en Austin, el 1-2 de marzo 2023! Por favor envíe su formulario de inscripción completado a Karla antes del 10 de Enero de 2023!  Descargue el formulario de inscripción desde aquí.

¡Días de Cabildeo de NHF en Washington 2023!

Los Días de Cabildeo en Washington de la NHF vuelven a ser presenciales, del 8 al 10 de marzo de 2023.  La Fundación de Trastornos Hemorrágicos Lone Star y la Coalición enviarán un número limitado de personas a participar.  Las solicitudes ya están disponibles  aquí.

Prioridades Legislativas

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Click Here to learn more about TXBDC Austin Days.

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Advocate

Click Here to learn more about TXBDC Washington Days.

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News from HFA

  • HFA Project Featured in International, Peer-Reviewed Scientific Journal

    Hemophilia Federation of America is excited to announce its work encouraging patient-centered research for females with bleeding disorders, conducted by members of its staff as well as trusted medical advisors in the bleeding disorders community, has been published in the international, peer-reviewed scientific journal Haemophilia. “Females+ with bleeding symptoms or a diagnosis of a bleeding The post HFA Project Featured in International, Peer-Reviewed Scientific Journal appeared first on Hemophilia Federation of America.

  • Dear Addy: SSI Eligibility

    Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls that might cause me to lose eligibility for both programs. What do I need to watch out for? Signed,Worried Dear Worried, Unfortunately, you are right to be concerned about hidden The post Dear Addy: SSI Eligibility appeared first on Hemophilia Federation of America.

  • Word from Washington: October 2023

    Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at issue permitted health plans to implement so-called “copay accumulator adjuster programs” (CAAPs)—strategies whereby health plans accept copay assistance, but refuse to credit those amounts toward The post Word from Washington: October 2023 appeared first on Hemophilia Federation of America.

  • Dear Addy: Medicare Enrollment 2024

    Dear Addy, I’ve been enrolled in Medicare for a couple of years now and am weighing my plan options for 2024. What do I need to know about choosing a plan for the coming year? Signed, Medicare Beneficiary Dear Beneficiary, Every year Medicare Open Enrollment runs from October 15 through December 7. This is the The post Dear Addy: Medicare Enrollment 2024 appeared first on Hemophilia Federation of America.

  • Court Overturns Accumulator Adjuster Rule

    Court orders HHS to revise federal regulations permitting harmful copay accumulators  In a preliminary victory for consumers, a federal judge in the District of Columbia set aside federal regulations that disadvantage people who rely on copay assistance to afford their medications. The ruling is welcome news for patient groups that have long opposed so-called “copay The post Court Overturns Accumulator Adjuster Rule appeared first on Hemophilia Federation of America.