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Recursos

Centros de Tratamiento de Hemofilia

Muchas personas con trastornos hemorrágicos utilizan los recursos de su centro de tratamiento de la hemofilia (HTC, por sus siglas en inglés). Las personas que acuden a centros de tratamiento de la hemofilia no sólo encontrarán lo más novedoso en atención médica, sino que también se beneficiarán de un personal con experiencia y atento que se toma el tiempo necesario para desarrollar planes integrales de atención terapéutica para los pacientes y sus familias.

Centros de Tratamiento de Hemofilia Locales:

  • Gulf States Hemophilia & Thrombophilia Center
    6655 Travis, Suite 100
    Houston, TX 77030
    Phone: 713-500-8360
  • Texas Children’s Hemophilia & Thrombosis Center
    6701 Fannin Street
    Suite 1580
    Houston, Texas 77030
    Phone: 832-822-4362
  • Children’s Blood and Cancer Center of Central Texas – Dell Children’s Specialty Pavillion
    4910 Mueller Blvd Ste 200
    Austin, TX 78723
    Phone: 512-628-1900
  • South Texas Hemophilia Treatment Center
    Gateway Medical Park
  • 8435 Wurzbach Road
    San Antonio, TX 78229
    Phone: 210-567-7000

Programas de Asistencia

El trabajador social de su Centro de Tratamiento de Hemofilia puede ayudarle a buscar recursos de asistencia financiera.

Póngase en contacto con su trabajador social para obtener una solicitud de remisión de LSBDF Helping Hands.

Programa de asistencia para la hemofilila

Sitio web

Programa de asistencia para la hemofilila

Programa de asistencia de hemofilia ayuda a los tejanos con hemofilia a cubrir sus facturas médicas. Se proporciona asistencia con productos de sustitución del factor sanguíneo o reembolso del pago de prima del seguro médico.

¿Quién es eligible para los servicios?

HAP está disponible para cualquier persona que:

  • Vive en Texas
  • Es mayor de 18 años
  • Tiene un ingreso igual o inferior al 200 por ciento de las Directrices Federales de Pobreza
  • Tiene un diagnóstico de la hemofilia de un médico con licencia
  • No está encarcelado o bajo la tutela del estado
  • No es eligible para el Programa de Niños con Necesidades Especiales de Servicios de Salud, Medicaid o Medicare.

La Fundación PAN

https://www.panfoundation.org

News from HFA

  • Word from Washington: November 2023

    HFA returned to Capitol Hill on Nov. 13 for its tenth annual Patient Fly-in and Congressional reception. Twenty-two community members from 16 different states came to Washington, D.C., for policy and advocacy briefings, followed by meetings on Capitol Hill with 35 Congressional offices.   Advocates asked lawmakers to support the HELP Copays Act (H.R. 830, S. The post Word from Washington: November 2023 appeared first on Hemophilia Federation of America.

  • HFA Project Featured in International, Peer-Reviewed Scientific Journal

    Hemophilia Federation of America is excited to announce its work encouraging patient-centered research for females with bleeding disorders, conducted by members of its staff as well as trusted medical advisors in the bleeding disorders community, has been published in the international, peer-reviewed scientific journal Haemophilia. “Females+ with bleeding symptoms or a diagnosis of a bleeding The post HFA Project Featured in International, Peer-Reviewed Scientific Journal appeared first on Hemophilia Federation of America.

  • Dear Addy: SSI Eligibility

    Dear Addy, I receive disability benefits under the Supplemental Security Income (SSI) program and, through SSI, qualify for Medicaid. I am concerned about hidden pitfalls that might cause me to lose eligibility for both programs. What do I need to watch out for? Signed,Worried Dear Worried, Unfortunately, you are right to be concerned about hidden The post Dear Addy: SSI Eligibility appeared first on Hemophilia Federation of America.

  • Word from Washington: October 2023

    Hemophilia Federation of America and allied patient advocates cheered a Sept. 29 court decision setting aside a federal rule that harms people who rely on copay assistance. The rule at issue permitted health plans to implement so-called “copay accumulator adjuster programs” (CAAPs)—strategies whereby health plans accept copay assistance, but refuse to credit those amounts toward The post Word from Washington: October 2023 appeared first on Hemophilia Federation of America.

  • Dear Addy: Medicare Enrollment 2024

    Dear Addy, I’ve been enrolled in Medicare for a couple of years now and am weighing my plan options for 2024. What do I need to know about choosing a plan for the coming year? Signed, Medicare Beneficiary Dear Beneficiary, Every year Medicare Open Enrollment runs from October 15 through December 7. This is the The post Dear Addy: Medicare Enrollment 2024 appeared first on Hemophilia Federation of America.