Resources
Additional Resources
The National Bleeding Disorders Foundation is dedicated to finding better treatments and cures for bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Click the following links to visit specific pages within NHF’s website:
- Research Grants Program
- Medical and Scientific Advisory Committee (MASAC)
- Steps for Living
- Victory for Women
- Better You Know
The Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community. Their vision is that the bleeding disorders community will remove all barriers to both choice of treatment and quality of life.
Apply for the 2022 LSBDF/HFA Symposium Scholarship here.
World Federation of Hemophilia: An international not-for-profit organization dedicated to improving the lives of people with hemophilia and related bleeding disorders. They have developed a collection of Toolkits for many stages of life. Download informational pages and tools that you can share with teachers, ER staff, and more.
Committee of Ten Thousand: A grass-roots, peer-led, education, advocacy and support organization for persons with HIV disease. The majority of their constituency is persons with hemophilia who contracted HIV/AIDS from tainted blood products.
Patient Notification System: A free, confidential, 24-hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.
Medic Alert Foundation: The original medical ID company that provies 24/7 emergency services.
American Medical ID: Medical ID company partnering with LSBDF to give patients 10% off their purchase and gives 10% back to the Chapter. Get code here.
LA Kelley Communications (PEN Newsletter): Founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.
Patient Services, Inc.: A non-profit organization based in Virginia, that has been expanding its effort to help patients with chronic illnesses pay for rising drug costs.
FDA’s Blood Products Hotline: Provides information for patients, and supports programs specifically designed to help ensure that patients’ voices are reflected in the regulatory decision making process.
Foundation for Women and Girls With Blood Disorders: Provides a wealth of information for women and girls dealing with bleeding disorders. Diagnosis, treatment, and care information all at your fingertips.
Scholarships
There are a number of educational scholarships available for people with bleeding disorders and their children, parents, partners, spouses and siblings. HANDI has compiled a list that you can view at the NHF website by clicking here.
