Our History

The Lone Star Bleeding Disorders Foundation traces its roots back to 1969 when families first gathered around kitchen tables, offering one another support on their journey with a bleeding disorder. In those early years, informal education sessions and grassroots fundraising efforts helped build a sense of community and connection.

In 1991, the organization officially incorporated as a 501(c)(3) nonprofit, marking a significant step in its growth. Throughout the 1990s and early 2000s, the Lone Star Chapter played an active role in federal and state advocacy efforts, working to improve access to care and support for those affected by bleeding disorders. As awareness grew, so did the organization—more structured events and fundraisers brought families together across South Texas.

A milestone year came in 2008 when the Chapter hosted the first Texas Bleeding Disorders Conference and the inaugural Hemophilia Walk, which later became the Unite for Bleeding Disorders Walk. Both events remain annual traditions, strengthening the community and advancing awareness.

Advocates continued to play a critical role in passing key legislation at both the state and federal levels, ensuring greater access to treatment and resources for those with bleeding disorders.

In 2019, the organization transitioned from the Lone Star Chapter of the National Hemophilia Foundation to the Lone Star Bleeding Disorders Foundation, a name that better reflects the diverse community it serves.

Today, the Lone Star Bleeding Disorders Foundation supports nearly 700 families across South Texas, providing essential education, advocacy, and community programs. As we continue to grow, our commitment remains the same: to empower, support, and advocate for those affected by bleeding disorders.