Camp Ailihpomeh
The mission of Camp Ailihpomeh (Hemophilia spelled backwards) is to serve the needs of boys from age seven to seventeen with bleeding disorders, providing a camping experience for a group of children who have traditionally been excluded from participating in other summer camp programs. The experience of camping with other children in a natural outdoor setting strengthens the child’s ability to cope with the daily physical and emotional challenges of a disability and/or chronic illness.
Women's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood sisters (people who identify as female, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (moms or grandmothers) of children with a bleeding disorder.
Bugs for Bleeders Crawfish Boil
Join us for a day of great food, live music, and community fun at the Bugs for Bleeders Crawfish Boil! This exciting event raises awareness and funds for the Lone Star Bleeding Disorders Foundation, supporting individuals and families affected by bleeding disorders.
Enjoy a delicious crawfish feast, plus additional food options for non-bug eaters. Dance along to live music by Cypress’s own Marcus Bridenthal, test your luck with raffle prizes, and take part in fun games for all ages.
Come together with the Cypress, Tomball, and LSBDF communities for a fun-filled day in support of a great cause. We can’t wait to celebrate with you!
🎟 Tickets are available for purchase—don’t miss out!
Washington Days
NBDF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2024, Washington Days had more than 400 volunteer advocates from 45 states who met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase the affordability of coverage and access to care. This gathering took place in Washington, D.C., on March 6-8, 2024.
Austin Days
Austin Advocacy Days offers an opportunity for Texans affected by inherited blood disorders to advocate for important issues at the state level. Since the Texas Legislature meets biannually (every two years on the odd year), this event is crucial for engaging with lawmakers about the needs of the bleeding disorders community. Austin Advocacy Days will focus on state policies that enhance care affordability and coverage for Texans.
Family Education Day
In the Spring/Summer of each year, The Lone Star Bleeding Disorders Foundation hosts regional Family Education Days. Enjoy a meal, some education, and networking with our industry partners. Check our calendar of events for dates in your area.
Winter Event
Join us for some holiday fun, chapter update, board elections and then spend the rest of the day at SeaWorld enjoying the rides, holiday lights and activities! Lunch will be provided. Wristbands to the park will be given at lunch after everyone has attended the program. Complimentary breakfast buffet will be provided the next Sunday morning. *Register by October 22nd to guarantee your hotel room. Lone Star will provide one hotel room per family. This event is only for immediate family members. Limited Space Available!
Unite Walk - Houston
By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways. Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives. Your donation truly makes a difference!
The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to two events, including the Hill Country. It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!
Couple's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more.
Blood Brotherhood
Topic: A Joint Effort: Teaming Up for Joint Protection
Description: It takes a team (patient, caregiver and clinician) to stay on top of joint health. Learn how to maintain healthy joints, help prevent damage, and treat, if necessary.
Speaker: Sara Caldwell, Takeda
Join us for lunch, education and fun with your Blood Brothers. After the meal and presentation, enjoy playing golf and football on the big screens. You may continue to play after 4pm, but at that time all gameplay, food and beverage will be at your cost. No alcohol will be provided during the program. If you choose, after the program, any alcoholic beverages will be at your cost and your responsibility. Please be responsible.
Very Limited Space Available! Register Soon!
**Registration is only for MEN - patients and immediate caregivers ages 17 and older.
Houston Educational Dinner Program
Topic: Building Your Advocacy Toolkit
Speaker: Giraldo Gonzalez, Sanofi CoRe
Peer Speaker: Phil H.
Limited Space Available! Register Soon!
**Registration is only for immediate family members in your family who live together in your same household that are part of your family affected with a bleeding disorder**
Unite Walk - Hill Country
By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways. Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives. Your donation truly makes a difference!
The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to two events, including the Hill Country. It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!
National Bleeding Disorders Foundation Bleeding Disorders Conference
The National Bleeding Disorders Foundation (formally NHF)’s 76th Annual Bleeding Disorders Conference (BDC) are excited to bring the bleeding disorders community together again for three incredible days of educational sessions, valuable networking opportunities, and exciting exhibits at the Georgia World Congress Center.Women's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood sisters (people who identify as female, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (moms or grandmothers) of children with a bleeding disorder.
Men's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood brothers (people who identify as male, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (dads or grandfathers) of children with a bleeding disorder.
Camp Ailihpomeh
The mission of Camp Ailihpomeh (Hemophilia spelled backwards) is to serve the needs of boys from age seven to seventeen with bleeding disorders, providing a camping experience for a group of children who have traditionally been excluded from participating in other summer camp programs. The experience of camping with other children in a natural outdoor setting strengthens the child’s ability to cope with the daily physical and emotional challenges of a disability and/or chronic illness.Texas Bleeding Disorders Conference
TBDC is a joint effort between the Lone Star BDF and Texas Central Texas Central Bleeding Disorders, bringing over 800 people from all over the state of Texas together for a weekend of education, networking, and fun. Educational sessions are available for every step of life with a bleeding disorder. A fun Final Night event wraps up the weekend, with activities for the whole family. To register online please click here.
Coalition B Symposium
The Coalition for Hemophilia B, Inc., strives to make quality of life the focal point of treatment for people with hemophilia B and their families through education, empowerment, advocacy, and outreach. Hear from the Coalition B community about their experience at our annual symposium. 
Hemophilia Federation of America Symposium
The Hemophilia Federation of America (HFA) is heading to Indianapolis for their annual Symposium! Join them for this year’s conference from Thursday, April 11 to Sunday, April 14 at the JW Marriott Indianapolis in Indianapolis, Indiana.
They will have dozens of sessions for blood brothers, blood sisters, children, parents, caregivers and more, along with great opportunities to connect with the new and old friends from around the country. A limited number of travel scholarships are provided by HFA. Learn more about their scholarship offerings by clicking here.
Wheels 4 the World
This event is part of Save One Life’s biggest fundraiser, Wheels for the World. The fundraiser began in honor of community member Barry Haarde, who rode his bike across the country six times to fundraise for Save One Life. Wheels for the World supports Save One Life’s programs, which give direct financial assistance to children with bleeding disorders in developing countries.