Women's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood sisters (people who identify as female, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (moms or grandmothers) of children with a bleeding disorder.
World Hemophilia Day - Valley Program
In recognition of World Hemophilia Day, wear red today!
Texas Bleeding Disorders Conference
The Texas Bleeding Disorder Conference (TBDC) is a joint effort between the Lone Star Bleeding Disorders Foundation and the Texas Central Bleeding Disorders. This event brings hundreds of people from all over the state of Texas together for a weekend of education, networking, and fun.
Educational sessions are available for every step of life with a bleeding disorder. A fun final night event wraps up the weekend with activities for the whole family.
REGISTER HERE: https://cvent.me/lqePlv
Camp Ailihpomeh
The mission of Camp Ailihpomeh (Hemophilia spelled backwards) is to serve the needs of boys from age seven to seventeen with bleeding disorders, providing a camping experience for a group of children who have traditionally been excluded from participating in other summer camp programs. The experience of camping with other children in a natural outdoor setting strengthens the child’s ability to cope with the daily physical and emotional challenges of a disability and/or chronic illness.
Men's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood brothers (people who identify as male, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (dads or grandfathers) of children with a bleeding disorder.
Unite Walk
By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways. Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives. Your donation truly makes a difference!
The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!
Winter Event
Join us for some holiday fun, food, chapter update, board elections and Santa
Limited Space Available!
Contact Lone Star to Register - hhensley@lonestarbleedingdisorders.org
NBDF Educate to Elevate/Bugs for Bleeders Crawfish Boil
Join us for our 3rd annual Bugs for Bleeders Crawfish Boil, benefiting the Lone Star Bleeding Disorders Foundation, This year’s event is extra special as Lone Star will be featured in NBDF’s national Educate to Elevate livestream, highlighting the impact of bleeding disorders support across the country. Live musical entertainment from Texas singer‑songwriter Keelan Donovan will be on board. Every ticket supports local families living with bleeding disorders and helps strengthen education, advocacy, and community programs across the state
Washington Days
NBDF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2025, Washington Days had more than 400 volunteer advocates from 45 states who met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase the affordability of coverage and access to care. This gathering took place in Washington, D.C., on March 5-7, 2025.
Family Education Day
Join us for our Spring Family Education Day on Saturday, February 28 at Great Wolf Lodge in Webster. Enjoy a meal, some education, and networking with our industry partners. One hotel room per family. Register now. Space is limited.
Great Wolf Lodge Texas Gulf Coast
1000 Great Wolf Way
Webster, TX 77598
San Antonio Educational Dinner Program
Join us for a Lone Star San Antonio Educational Dinner program presented by Octapharma and Sands Rx.
Winter Event
Join us for some holiday fun, food, chapter update, board elections and Santa at the San Antonio Marriott Riverwalk.
Limited Space Available!
Contact Lone Star to Register - hhensley@lonestarbleedingdisorders.org
San Antonio Women’s Educational Dinner Program
Limited Space Available! Register Soon!
Contact Lone Star to register for this event - hhensley@lonestarbleedingdisorders.org
Houston Educational Dinner Program
Limited Space Available! Register Soon!
Contact Lone Star to register for this event - hhensley@lonestarbleedingdisorders.org
Unite Walk - Houston
By participating in the Unite Walk, you are supporting families with bleeding disorders in many ways. Funds raised support educational programs to help them manage their bleeding disorder, advocacy efforts to improve access to care, and national research initiatives. Your donation truly makes a difference!
The Lone Star Bleeding Disorders Foundation was one of five inaugural sites of the National Hemophilia Foundation’s Hemophilia Walk Program in 2008. It started in Houston, and has grown to two events, including the Hill Country. It is a family-friendly day of fun, exhibits, games, photo booths, music, and more!
Austin Educational Dinner Program
Contact Lone Star to register for this event - hhensley@lonestarbleedingdisorders.org
Men's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood brothers (people who identify as male, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (dads or grandfathers) of children with a bleeding disorder.Camp Ailihpomeh
The mission of Camp Ailihpomeh (Hemophilia spelled backwards) is to serve the needs of boys from age seven to seventeen with bleeding disorders, providing a camping experience for a group of children who have traditionally been excluded from participating in other summer camp programs. The experience of camping with other children in a natural outdoor setting strengthens the child’s ability to cope with the daily physical and emotional challenges of a disability and/or chronic illness.Women's Retreat
The weekend-long retreat will feature educational sessions, social activities, health and wellness workshops, breakout sessions, and much more for all blood sisters (people who identify as female, ages 18+, with any type of a bleeding disorder), or Caregivers/parents (moms or grandmothers) of children with a bleeding disorder.
Bugs for Bleeders Crawfish Boil
Join us for a day of great food, live music, and community fun at the Bugs for Bleeders Crawfish Boil! This exciting event raises awareness and funds for the Lone Star Bleeding Disorders Foundation, supporting individuals and families affected by bleeding disorders.
Enjoy a delicious crawfish feast, plus additional food options for non-bug eaters. Dance along to live music by Cypress’s own Marcus Bridenthal, test your luck with raffle prizes, and take part in fun games for all ages.
Come together with the Cypress, Tomball, and LSBDF communities for a fun-filled day in support of a great cause. We can’t wait to celebrate with you!
🎟 Tickets are available for purchase—don’t miss out!
Washington Days
NBDF’s Washington Days is an opportunity for people affected by inherited blood disorders to advocate for issues that are important to them. In 2024, Washington Days had more than 400 volunteer advocates from 45 states who met with legislators and staff to discuss federal funding for bleeding disorder programs and support policies that increase the affordability of coverage and access to care. This gathering took place in Washington, D.C., on March 6-8, 2024.
Austin Days
Austin Advocacy Days offers an opportunity for Texans affected by inherited blood disorders to advocate for important issues at the state level. Since the Texas Legislature meets biannually (every two years on the odd year), this event is crucial for engaging with lawmakers about the needs of the bleeding disorders community. Austin Advocacy Days will focus on state policies that enhance care affordability and coverage for Texans.
Family Education Day
In the Spring/Summer of each year, The Lone Star Bleeding Disorders Foundation hosts regional Family Education Days. Enjoy a meal, some education, and networking with our industry partners. Check our calendar of events for dates in your area.
Winter Event
Join us for some holiday fun, chapter update, board elections and then spend the rest of the day at SeaWorld enjoying the rides, holiday lights and activities! Lunch will be provided. Wristbands to the park will be given at lunch after everyone has attended the program. Complimentary breakfast buffet will be provided the next Sunday morning. *Register by October 22nd to guarantee your hotel room. Lone Star will provide one hotel room per family. This event is only for immediate family members. Limited Space Available!