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Giving Tuesday

 

Giving Tuesday is a global campaign to encourage charitable giving. By donating the Lone Star Bleeding Disorders Foundation on Giving Tuesday, you are making an impact on families in South Texas with Hemophilia, von Willebrand Disease, and other rare bleeding disorders. 

 

Your support enables us to provide programs like Camp Ailihpomeh, a summer camp for boys with bleeding disorders, where patients like Kyle took a huge step towards independence by learning to infuse his medication at the age of 7. 

 

Programs like the Texas Bleeding Disorders Conference brings families across the state together for a weekend of education and networking. Families like the Clawsons feel supported and empowered when they attend Chapter events and connect with other families going through similar issues. And for families whose child has spent a week in the hospital with a dangerous bleed, we are able to provide financial assistance through our Helping Hands Program.

 

You can make a difference by giving on Giving Tuesday!

Make a difference Today!

Click here to Donate

News from HFA

  • May is Hepatitis Awareness Month

    In 2001, the Centers for Disease Control and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral hepatitis. In the 1980s and ’90s, thousands of people with hemophilia contracted HIV and hepatitis C (HCV) from the contaminated blood supply transmitted by clotting factor products. The post May is Hepatitis Awareness Month appeared first on Hemophilia Federation of America.

  • FDA Approves One-Time Gene Therapy for Adults with Hemophilia B

    From Pfizer: Pfizer Inc. announced that the US Food and Drug Administration has approved BEQVEZ™ (fidanacogene elaparvovec-dzkt) for the treatment of adults with moderate to severe hemophilia B who currently use factor IX (FIX) prophylaxis therapy, or have current or historical life-threatening hemorrhage, or have repeated, serious spontaneous bleeding episodes, and do not have neutralizing The post FDA Approves One-Time Gene Therapy for Adults with Hemophilia B appeared first on Hemophilia Federation of America.

  • Advocacy News: March 2024

    Word From Washington Federal Agencies According to the latest KFF Medicaid Unwinding Enrollment Tracker, more than 19 million Americans have lost Medicaid coverage since states were allowed to resume eligibility verifications following the COVID-19 public health emergency (PHE). At least 70 percent of Medicaid terminations continue to be for procedural reasons (such as not returning The post Advocacy News: March 2024 appeared first on Hemophilia Federation of America.

  • Update on Smithsonian Institution Project to Archive Bleeding Disorders History

    Hemophilia Federation of America announced, in April of 2019, a partnership with the Smithsonian Institution to document the history of the bleeding disorders community, with a focus on the tragic experiences with contaminated blood, and we’re pleased to announce the first phase of the project is complete.   HFA began an initiative to collect artifacts and The post Update on Smithsonian Institution Project to Archive Bleeding Disorders History appeared first on Hemophilia Federation of America.

  • Advocacy News: February 2024

    Word From Washington State of the States The post Advocacy News: February 2024 appeared first on Hemophilia Federation of America.